개인 정보 보호에 대한 암 등록 사업의 해결 방안

• 영문명: Strategies of Cancer Registry against Protecting Personal Health Data
• 발행기관: 대한두경부종양학회
• 저자명: 박범정(Bum Jung Park) 주형로(Hyung Rho Joo) 박일석(Il-Seok Park) 김진환(Jin-Whan Kim) 노영수(Young-Soo Rho)
• 간행물 정보: 『대한두경부종양학회지』제23권 제2호, 147~152쪽, 전체 6쪽
• 주제분류: 의약학 > 종양학
• 파일형태: PDF
• 발행일자: 2007.11.30

영문 초록

Objectives and Background ：Aims of this studies are to collect and analyze the lawful restriction against cancer registration and to suggest the model promoting the cancer registry. Materials and Methods ：Total 16 countries, the members of OECD, including the U.S. are evaluated. the sta-tus of cancer registration of the evaluated countries are analyzed. The legislated laws, protect the individual’s information, of the evaluated countries are analyzed. The cases any registries were impaired with the law to protect privacy are searched and analyzed. Results ：All of the evaluated countries have some kinds of privacy protecting laws. For cancer registration, 11 of 16 countries implement some lawful authorities. Some of countries have experienced restriction of registration by the law of protecting individual’s health data. All countries have performed cancer registry and 6 of 16 countries have nearly 100% population-based cancer registration. Conclusions ：The cancer registry has to be the national effort. The informed consent of the data subjects and the permission of any special institutes are the difference to perform the registration. So, it is necessary to legi-slate any law supporting the cancer registration and establish any independent institutes to protect the individual’s health data and support the cancer registry.

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대상 및 방법

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키워드

Cancer Cancer registry Privacy Health data 암 암등록 사생활 건강 정보.